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Ongoing effects of ET and drugs
Blood Cancers & Disorders | Last Active: Jun 18 11:30am | Replies (11)Comment receiving replies
Eb and flow is a great way to put it. I have had side effects from both HU and Pegasus. I am on smaller doses and every time I try and go up my body reacts. I need to find the happy ground where these meds do something but don’t take the enjoyment out of life.
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I hear you. I was always really high energy, super organized, juggled a million things--typical Type A Virgo.
As a retired English prof, I have thousands of books I want to read for fun, and that's my go to when I'm going thru a low ebb period. I also knit baby blankets for the baby pantry. Really easy and mindless activity that makes you feel you're accomplishing something. I urged Dad to knit when he was sidelined with ET and emphysema but he was pretty entrenched in his TV routine.
I have an elliptical machine I use when I am sitting to get steps in and keep circulation going. (I wear a pedometer.) Used to love bike riding, but it makes me dizzy.
I use my crockpot a lot for days when cooking seems like a lot of effort.
I've cut my gardening back a lot, replacing most annuals with perennials and bushes.
Long story short, I have things to do on bad days so the no longer feel so bad. The daily yoga helps SO much, even if I just do 10 minutes in the chair.