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NIH to Open Clinical Trials for Long COVID Post Exertional Malaise

Post-COVID Recovery & COVID-19 | Last Active: Jun 13 4:27pm | Replies (11)
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@emo

I hope if you’re interested you’re able to get into the trial (and not get the “placebo” treatment)! Lol.

I just joined the NIH Paxlovid trial, and I get my first dose this week. I was assigned to the dysautonomia group (the others are post exertion malaise and brain fog). Then I saw this and…this is an intervention more up my alley, but all the sites aren’t posted yet. Still, I’m glad some things are moving forward.

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Replies to "I hope if you’re interested you’re able to get into the trial (and not get the..."
celia16 | @celia16 | Jun 11 6:19pm

One issue is that I never had fatigue. There seemed to be only certain categories that I didn’t seem to fit.

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erinhastedt | @erinhastedt | Jun 12 2:43pm

I'm wondering how to join an NIH trial or study. I have POTS and Long Covid symptoms (I think), especially PEM so I do believe I'd be a good patient to study. My whole life has changed since getting Covid in 2022. I went from being active and healthy to being sick and in pain most of the time. I appreciate everyone's posts and experiences detailed on this site as it makes me realize I'm not imagining it!

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