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← Return to NIH to Open Clinical Trials for Long COVID Post Exertional Malaise
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NIH to Open Clinical Trials for Long COVID Post Exertional Malaise
Post-COVID Recovery & COVID-19 | Last Active: Sep 12 2:30pm | Replies (14)Comment receiving replies
I hope if you’re interested you’re able to get into the trial (and not get the “placebo” treatment)! Lol.
I just joined the NIH Paxlovid trial, and I get my first dose this week. I was assigned to the dysautonomia group (the others are post exertion malaise and brain fog). Then I saw this and…this is an intervention more up my alley, but all the sites aren’t posted yet. Still, I’m glad some things are moving forward.
Replies to "I hope if you’re interested you’re able to get into the trial (and not get the..."
I'm wondering how to join an NIH trial or study. I have POTS and Long Covid symptoms (I think), especially PEM so I do believe I'd be a good patient to study. My whole life has changed since getting Covid in 2022. I went from being active and healthy to being sick and in pain most of the time. I appreciate everyone's posts and experiences detailed on this site as it makes me realize I'm not imagining it!
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One issue is that I never had fatigue. There seemed to be only certain categories that I didn’t seem to fit.