Share your test results (if you'd like)

Posted by northoftheborder @northoftheborder, May 28 5:25pm

I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments

I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.

Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.

Do you have any recent test results you'd like to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Belatedly posting "good news" to share.
My 3rd quarterly uPSA folowing completion of salvage treatment returned May 31 as < .02 (undetectable as .02 is the limit of detection for Quest Labs).
Emotionally, I think that I should be thrilled, but that negative voice in my head keeps saying wait; it comes back.
Logically, I am 1 yr since completion of Salvage Radiation and short-term ADT, so this should suggest that it's a "real" number no longer influenced short term by the treatments.
Follows 6 & 9 mos uPSA readings of < .02 in Nov '23 and Feb '24.
So 3 in a row "undetectable ". Hoping it holds.
We are all the same, and all different, however I would love to hear from others who have followed their PSA post salvage tx.
Honestly, G 9 w/ EPE has bad statistics and I know the treatments have improved and the prognosis should be better. Yet the nagging worry remains.
On the brighter side, my wife and I were able to enjoy trips in Oct/Nov '24 and Apr '24 to the countrysides of France and Italy, and are planning for another trip to different parts of France in Oct/Nov '24.
Best to everyone.

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@stevecando54

I'll probably stay with the firmagon. the side effects look the same. I go every month for blood work, office visit then the shot. The area of the shot does get annoying. This last time the nurse put the spot a little higher then usual, seems to be better, not hitting on my belt like it usually does. Been a little rough last couple days, nothing we haven't been through already though. When having a rough day, I never know what side is causing it though. Like the rest of us, get through the day and hope tomorrow is better, those good days do come and I do so enjoy them. When I have a really really good day, I tell my wife to remind me of the day when it's not going good. Best to all.

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According to the Firmagon website, they're supposed to rotate the area of your monthly shot around your naval (e.g. top left, top right, bottom left, bottom right) so that every "quadrant" gets a 4-month rest before the next shot. That helped a bit for me.

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@northoftheborder

According to the Firmagon website, they're supposed to rotate the area of your monthly shot around your naval (e.g. top left, top right, bottom left, bottom right) so that every "quadrant" gets a 4-month rest before the next shot. That helped a bit for me.

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I'll have to put more thought into this. I get to pick the area, I usually pick left side for the firmagon because it's less "pinching" when bending over. This last one being a little higher has been good, very little pinching when bending over or getting up from the recliner. I always get the Xgeva shot on the right side of stomach, although they say I can get in my arm, I went with the got my shirt up anyway, just nail it. Maybe go with the arm shot next time. Little funny, last scan they noted the injection area from the scan, and that was day before I got the next shot. I thank you for giving me something to consider and always being supportive. Best to all.

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@stevecando54

I went for scans today, Cat scan is easy enough, feet first.. followed that with a MRI, head first is a little tough for me. 45 minutes the tech said, was long time for me, keep eyes closed and breathe easy. I will get the results tomorrow when I visit my Oncologist. I'm one of those I don't want to know anything, but after reading on here, I'm contemplating on having my wife tell me what is in these scans. On the one hand it could knock me down but maybe it could be good to know and use the info to stay strong. My doctor is going to tell me the highlights anyway, maybe I say this is what I have and still I'm moving forward. Best to all.

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For what’s it’s worth, I’m the same as you regarding tests results. I get them online very fast but seldom look. You are not alone! Stay healthy! 🤞🙏🏻

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Checked last month. PSA, .0004. Very pleased. I would just like to pee less--:)
Anyone have any input on that?? Even a dental appointment for a crown, 90 minutes
is a hassle! Thank you.

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6/7/2024 - PSA 10.68
Head and Neck (HNC)cancer survivor.
Last Chemo, Radiation, Steroid Infusion Treatments: April 2021

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@q95oldies

Checked last month. PSA, .0004. Very pleased. I would just like to pee less--:)
Anyone have any input on that?? Even a dental appointment for a crown, 90 minutes
is a hassle! Thank you.

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On top of cutting down on irritants like caffeine, alcohol, and spicy foods, you might be able to reduce your urge to go by taking Myrbetriq, which relaxes to detrusor muscle (the involuntary muscle that suddenly squeezes your bladder, e.g. when you're about to put the key in the front door 🙂). It might be worth talking to your doctor about it — I had to go up from 25 mg/day to 50 mg at first before it helped

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I was on that during, and right after radiation. I really couldn't tell much difference. I'll look into that again. Thanks. I can totally dehydrate myself, and get maybe 2 hours, but I hate doing that.

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@q95oldies

I was on that during, and right after radiation. I really couldn't tell much difference. I'll look into that again. Thanks. I can totally dehydrate myself, and get maybe 2 hours, but I hate doing that.

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Yes, and the dehydration is counter productive, because it causes the urinary tract to become even more irritated.

As I mentioned, Myrbetriq didn't help me initially. My doctor had to raise the does to 50 mg, and even then, it took a few weeks to see a difference. Good luck!

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RRP March 2021 post surgery PSA 0.37 ( PSA was 11.6 prior to surgery)
7 weeks of salvage radiation ended Nov. 2021 PSA was 0.69 at start and 1.29 after radiation
November 2022 PSA 6.56 PET/CT scan followed finding metastatic lymph node in my chest
March 14 2023 PSA 13.46 at start of 24 week drug trial with 5 rounds of radiation to lymph node
August 28 2023 at end of trial PSA < 0.01
Dec 2023 PSA 0.02
Jan. 2024 PSA 0.08
March 2024 PSA 1.02
Today June 10 2024 PSA 6.57 PET/CT scan scheduled for July 22

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