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Newly diagnosed with AML (FTL3 TKD)

Blood Cancers & Disorders | Last Active: Oct 29 10:04am | Replies (16)
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@alive

Sorry to hear about your diagnosis! That’s the mutations I had also when I was diagnosed with AML over 8 years ago. I had 7+3 induction twice to put me into remission. I then had several chemo consolidations while I was waiting to find a stem cell transplant donor. My doctor said my mutations were aggressive and would require a transplant. I had a successful transplant 4,5 months after my diagnosis.

What are your doctors recommending? How are you feeling now?

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Replies to "Sorry to hear about your diagnosis! That’s the mutations I had also when I was diagnosed..."
jamielynn777 | @jamielynn777 | Jun 10 9:26am

Thank you so much for sharing your story!

So we don’t have the molecular report yet which helps to determine the prognosis and treatment plan. Should come this week though. I only know that I have completed 7 days of cytarabine and daunorubicin. Now I’m starting Midostaurin tablets targeted for FTL3 for 14 days. After 2 weeks they will retest the bone marrow.

Overall I feel fine and but I did pick up a Norovirus while being in the hospital. My counts are still really low and starting the new chemo isn’t really going to increase them either.

I’m just worried that chemotherapy will be too hard on my organs after seeing way too many TikTok videos on AML.

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