Who else has Autonomic Neuropathy?

I couldn’t have said it better

@andyjustin, I think a lot of us have learned it's best to focus on taking it one day at a time when it comes to dealing with neuropathy. If you haven't already seen it, the Foundation for Peripheral Neuropathy has some good information on living well with neuropathy here - https://www.foundationforpn.org/living-well/.

I have autonomic neuropathy diagnosed in 2021. I also have CAN-cardiac autonomic neuropathy diagnosed by my electrophysiologist. My heart rate is too fast or too slow (tachycardia/bradycardia). My blood pressure is too high or too low. I went two weeks at 150/100 and then my doctor put me on blood pressure medication big mistake my blood pressure fell (dizziness and passed out) then went back to my normal 130/70. This caused a whole slug of problems when it was high.
My body temperature is all over the place. I can be freezing and it be 108 degrees outside in Texas. I keep a sweater in my car at all times along with a blanket to cover my legs.I also have other forms of neuropathy.

I have complete vagus nerve damage. My torso doesn't register chronic pain from severe back injuries. all my autonomonic functions are affected which I maintain, with God's help. Maintenance is time consuming but the lack of the chronic back pain makes my life much easier. The quality of my life is completely necessitated by a good (up) attitude. The alternative (pain, pills & death) are not for me.I still have the foot pain. uncomfortable, but liveable.

I have the same problems. I finally found that if I keep calm, no stress I can manage all my problems much better. I found an herbalist she makes a natural herb (flowers, etc) for veterans with PTSD. I take 2 morning & night. I try to stay in areas where the temp is around 74-78, if not I wear a vest with pockets for 8 ice packs. The heartbeat is mostly managable that way. YOU CANNOT CONTROL ANY OF THEM WHILE STRESSED OUT. Just take one day at a time knowing that the alternative is worse.

I have to say that when I read all these postings concerning people suffering all manner of dreadful pain I feel great sympathy.
It’s very depressing when the medical profession is so advanced ,they can transplant hearts, do micro surgery on the brain etc. etc and neuropathy still defeats them.
When will we see a cure?

I have had neuropathy since 2016.It doesn’t get any better.

Hi, I have laso been suffering a lot , my sfn started in legs and progressed to hands, I have erythromelalgia , digestive disconfort, pain, extreme fatigue, and lately my salivary glands are also malfunctioning, I feel extra salivation all the time and its a little bit and I have to swallow fast all the time to avoid drooling. Anybody has this wierd sensation??? I Will be having some tests , sudoscan I guess and tilt table, last time they all turned out fine,I all started in 2019, anybody having problems with saliva?? My fatigue IS also increasing, I feel lousy.

Your experiencing one of the many pains and symptoms of neuropathy I have the same symptoms occasionally my symptoms seem to come and go coming more than going. FYI I tend to salivate when I get the same symptoms one would get with tri myalgia. The pain is intense. It comes as quickly as it goes, although it is happening more frequently when I first got diagnosed with autonomic neuropathy my doctor said something very simple. Welcome to your new normal not very comforting but basically my new reality bike everybody else we hope for the best and deal with the crap that’s the worst and sadly there is no happy ending , but there is an end. Wish I could be more positive, but I’m a very pragmatic person.

Yeah, I was diagnosed year and a half ago and I have to say the fact that you’re still functional after 10 years gives me a little bit of hope my condition is progressing rapidly intake of medication has doubled in the last six months. I am suffering multiple symptoms recently I hope I’m still around at 10 years, and when I say that what I mean is plainly, there was a point where I won’t feel comfortable living this type of existence come on Doc figure something out more than accepting it as your new, normal And the eventual….