Oh, please, no worries over not feeling organized. I’m a hot mess when it comes to that!! 😅 My mother tried in vain to get me more organized while she had her mitts on me and then passed the baton to my husband! We’ve been married 50 years and I think he’s finally given up. Thank heaven’s he’s organized!
I’m just not a linear thinker! But I do love helping people and I know how to research the heck out of things. I also got a huge education and personal experience by immersion in the world of blood cancers and bone marrow issues with my AML/bone marrow transplant. My doctor even told me a couple weeks ago that I should consider returning to the U to get a degree because I really took to this incredibly fascinating and complex world of blood cancers. We have some great chats and he is fully supportive of my mentoring in Connect. But bless his heart, at 70, I’m not going back to school. I’m having way too much fun without that type of pressure. But I can continue to use the knowledge I’ve gleaned to offer some better understanding and hope for anyone going through a blood cancer or blood conditions.

From everything I’m understanding now about Joe’s situation, he is on the right track and responding well to the treatment…just maybe needs some dosage tweaking. In the meantime it’s important for him to listen to his body and take naps or rests when he needs. I know, truly, how hard that is! I’ve never been a sedentary person and resting, yikes, that was one of hardest parts of my odyssey…ok there were worse things, but it’s the fatigue I remember vividly. So hang in there, Joe. I just feel things will be on the upside soon enough!

Hi @onthejoedock. Thought I’d take a moment to check in with you to see how your husband is doing. It’s been 6 months since we’ve chatted last so I wanted to see if his blood numbers have balanced with his Jakafi treatments. Has his energy level improved?