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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: 11 hours ago | Replies (1229)Comment receiving replies
I’m so sorry you’re going through this. What a horrible experience for you! I too have Mals and had celiac plexus block Didn’t relieve any pain at all. I didn’t have angiogram though. I always have chest pain with or without food. Worsens after food. Feels like burning. Have had dysautonomia as well. Surgeon told me the too usually go hand in hand. Right now I don’t qualify for surgery because plexus block didn’t help me. She now feels a lot of my symptoms are my esophagus and has sent me an urgent referral to gastroenterologist. Have you had endoscopy? Or other testing? For Mals or gi issues? When I’m in intense pain I always get checked out at er!!! I hope you feel better. And I think your Dr was very insensitive to you! Reach out with any questions at any time. I know what you’re going through with this Mals. But you may also have something else.
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Thanks for your kind words. I started with gastro. I've had every tests there is, colonoscopy, Endo, Barium swallow, and others. I've been told I have IBS-C, which I believe I do so I follow the low fodmap diet and it helps. Another gastro told me it was constipation causing my stomach pain and weight loss. The third gastro told me it was Eosinophilic gastroenteritis. It was the Mayo clinic Gastro that was concerned about the extreme weight loss and ordered the CT Angio and U/S, then referred me to the vascular surgeon. I was praying that this would work. When they were doing the ultrasound, that's right where the pain was, right where that celiac artery would be. It has to still be the cause of my weight loss and pain. I just need a fix!! I have my post op appointment Friday. Hopefully there will be something good to come from all of this that can help. I'm surprised they didn't send you to gastro first. Hopefully they will get to the bottom of your health issues and help you ♥️