After having a robotic lap surgery to release the Median Arcuate Ligament and nerves, I had reached out to Dr Hsu, a very well known surgeon in Connecticut. He wanted a CPB. I had 2 that failed and he would see me or consider surgery.
I reached out to Dr Park from University Hospital in Ohio. He also wanted another Block but wanted it done another way, and by someone he knew at Cleveland Clinic. I saw Dr Abrahams and it worked.. Don't give up. You need to find the right qualified doctors and sometimes that may mean you need to travel to get help. I traveled from Florida. Reach out to the MALS Foundation and MALS Pals on Facebook. You won't find a better place for resources. Good Luck and Stay Positive.