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I’ve had essential thrombocythaemia for 23 years now,and thyroid issue

Blood Cancers & Disorders | Last Active: Jun 9 11:45am | Replies (5)
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@romanjay26

Sorry for late reply,just come home from vacation,I started on Anagrelide 20 years ago but it just didn’t agree with me,then I was put on hydroxides but I had read studies that taking this drug for a long period of time can put a strain on your bone marrow and there was more chance of getting Leukemia,I got thyroid issues about 10 years ago everything was fine until about 6 months ago,severe migraines,weigh loss,they said my thyroid was not functioning so I’ve had the dose increased from 125 to 200micrograms of levothyroxine,my GP told me it was stable,but my oncologist sent me a letter telling me it’s deranged,also on my holiday I noticed just below my breast line on either side I have what looks like purple bruising under my skin so I’m going to see my doctor I’m going to let them know about what you have said regarding the injections,they increased the dose about a year ago and I think that’s when I started having problems with my thyroid,Thankyou for your advice

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Replies to "Sorry for late reply,just come home from vacation,I started on Anagrelide 20 years ago but it..."
Lori, Volunteer Mentor | @loribmt | Jun 9 9:53am

Yes, I think that’s a very good idea to check back with your doctor about these new symptoms. If the Hydroxyurea you were taking for ET was working for you without any side effects you might want to consider returning to that medication. Many people have been on that drug for years because it works so well. The risk of developing leukemia is very low and the benefits of the drug outweigh those risks.

Something to consider. This switch to Peg-interferon may have brought on the increased issues with your thyroid and possibly causing some of your other symptoms as well, since they seem to have started with the change in meds. These symptoms are tangible and creating obvious issues, while the threat of leukemia from the hydroxy was only in the fine print and minimal at best. This would be a good discussion to have with your hematologist and your general practitioner.
I hope you were able to enjoy your vacation. ☺️ Will you let me know what you find out from your doctor, please?

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