I actually saw my oncologist yesterday after a CT scan and blood tests. Not the surgeon or hospital where the Paget's was discovered. Gynecologist are centred at a different hospital. My oncologist has ordered a biopsy of a lymph gland in my neck, a PET scan which will apparently show signs if there is cancer. Plus an MRI. He is very concerned (as am I) about cancer not necessarily related to the Paget's. He said there's no way to know it is invasive without tests like biopsies, if I understood correctly. That blood tests aren't precise enough... anyhow - I am shaken - but so thankful not to, at 77 1/2 have gone for the horrific, very large surgery that was suggested for Paget's. I may be dealing with an entirely different beast - and will know more after the PET scan, etc.