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Positive test results for amyloids

Blood Cancers & Disorders | Last Active: Jun 22 8:13am | Replies (19)

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@lmoser23

How is it going?

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Actually it’s not going too bad. The chemo is shots. I have completely 2 rounds/ am started my 3rd. The shots will be reduced to 1 shot then 2 every other week. Hoeing this will make the dizziness reside. But am pretty sure that’s from the hypertrophic cardiomyopathy. They said at OUMC that my heart is not strong enough for the stem cell transplant. I get to see a cardiologist that specializes in cardiac and amyloidosis, soon to see what he says he might want to do cardiac rehab. Has anyone done that with hypertrophic cardiomyopathy? Wondering ?
I guess I need a new pumper…. My light chain numbers have gone down from 90 to 60. I think it’s great. So does my oncologist.
If I can’t do the stem cell transplant, I will have to do the shots longer. ☹️