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DiscussionAnyone have or heard of MDS with 5q-syndrome?
Blood Cancers & Disorders | Last Active: Jun 18, 2024 | Replies (18)Comment receiving replies
Replies to "I have mixed feelings as well. When my hemoglobin dropped to 8.7, I felt awful. My..."
I also have MDS del 5q Currently my haemoglobin is sitting around 90. When I need transfusions I'm told I'll be started on Revlimid. Can I ask how you feel on this drug and what the side effects have been? I'm always fatigued, but still working. I wonder whether I'll be able to continue.