← Return to Husband diagnosed MCI: He is in denial and personality is changing

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@ncb

No, you aren't the only one with similar feelings. I find myself being very weepy in response to watching and listening to my husband struggle with newly diagnosed Parkinson's Disease and his lack of insight. And no, there is no appreciation - for us it has meant leaving a much-loved mountain cabin and moving the whole family down to a more oxygenated elevation (from 9300' in Rocky Mtns); healthy diet; regular visits to a gym and the library; managing his meds and medical appointments; setting up and getting him to at least one social event a day so that he interacts with (or at least sees) other people. Both of us have given up many things we loved doing and this is far from what we had planned to do in retirement. He refuses to discuss PD let alone read anything about the disease; and sarcastically tells me and health providers that the only person who thinks he has problems is me. (But so far, every sign and symptom I have identified has been substantiated by lab work and testing by professionals) Best wishes to you in your continuing care for your partner. Onward and upward!

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Replies to "No, you aren't the only one with similar feelings. I find myself being very weepy in..."

My guy has not been diagnosed: outside of home, he is pretty much as he was. But, given any level of not-perfect, he gets frustrated, yells and always wants more than I have to give. No indication that I might be tired, etc. So, I keep trying to remember to take care of myself first: he is safe, just angry. I go into another room, pick up another activity and, while I can, leave the house for errands every few days or meet a friend for lunch. Valium used to help my BIL, but they will not prescribe it. Instead we have Seroquel, which puts him to sleep. I keep a good schedule for non-processed meals, but I do not look forward to a time when I have to manage his meds.