Share your test results (if you'd like)

Posted by northoftheborder @northoftheborder, May 28 5:25pm

I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments

I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.

Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.

Do you have any recent test results you'd like to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Thank you! Just deal with it one day at a time. She was so strong she gave me a good example.

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I went for scans today, Cat scan is easy enough, feet first.. followed that with a MRI, head first is a little tough for me. 45 minutes the tech said, was long time for me, keep eyes closed and breathe easy. I will get the results tomorrow when I visit my Oncologist. I'm one of those I don't want to know anything, but after reading on here, I'm contemplating on having my wife tell me what is in these scans. On the one hand it could knock me down but maybe it could be good to know and use the info to stay strong. My doctor is going to tell me the highlights anyway, maybe I say this is what I have and still I'm moving forward. Best to all.

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@stevecando54

I went for scans today, Cat scan is easy enough, feet first.. followed that with a MRI, head first is a little tough for me. 45 minutes the tech said, was long time for me, keep eyes closed and breathe easy. I will get the results tomorrow when I visit my Oncologist. I'm one of those I don't want to know anything, but after reading on here, I'm contemplating on having my wife tell me what is in these scans. On the one hand it could knock me down but maybe it could be good to know and use the info to stay strong. My doctor is going to tell me the highlights anyway, maybe I say this is what I have and still I'm moving forward. Best to all.

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The raw scan results are usually pretty ambiguous on their own, in my experience — your oncologist will put them together with other information to make a diagnosis. I hope everything turns out well.

FWIW, the bone scan was the worst of them for me, because they tied my arms to my side like a mummy for 45 minutes and shoved me into a tube so narrow that I had to scrunch up my shoulders to fit and I could barely breathe. I'll take an MRI or CAT scan over that any day.

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test results from scans, Dr. said everything looks goods, things are staying put which is good for me. They keep wanting to check the vertebrae but seems is okay. Had blood work, they check 41 different items, good grief. And I passed almost every one. Should be tomorrow my psa and testosterone levels will show up. Best to all.

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Two very minor test results for me today (confirming what I was already pretty sure of):

1. The sole polyp found and removed during my colonoscopy was benign.

2. There was nothing of concern in my KUB (Kidneys, Ureters, Bladder) ultrasound.

Boring news is good news.

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got test results, psa < 0.02 testosterone < 3, staying the course,, also got my Firmagon shot, that always starts up the roller coaster lol Best to all.

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@stevecando54

got test results, psa < 0.02 testosterone < 3, staying the course,, also got my Firmagon shot, that always starts up the roller coaster lol Best to all.

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I'm really appreciating Orgovyx after 2½ years on Firmagon. It works the same way and has the same chronic side-effects, but I don't have to deal with the 2–4 acute bad days after every monthly injection, or the swelling and big rash at the injection site.

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@northoftheborder

I'm really appreciating Orgovyx after 2½ years on Firmagon. It works the same way and has the same chronic side-effects, but I don't have to deal with the 2–4 acute bad days after every monthly injection, or the swelling and big rash at the injection site.

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did you switch from firmagon because you "wanted" to? I'll be dog gone if I forget how it gets after the shot but somehow catches me off guard. I should know better by now,LOL Best to all.

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@stevecando54

did you switch from firmagon because you "wanted" to? I'll be dog gone if I forget how it gets after the shot but somehow catches me off guard. I should know better by now,LOL Best to all.

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Orgovyx was approved by Health Canada only last October, so it's not very common up here yet — I was the first to ask for it it at my local pharmacy. My oncologist offered it as a Firmagon alternative when I mentioned the swelling I got every month after the shot.

Its retail price is the same as Firmagon — around CA $300/month (US $220) — but when I checked in April, private Canadian insurance companies were still "researching" it, and it wasn't in the Ontario formulary yet. I would have paid the cost myself to avoid those monthly injections, but fortunately my oncologist signed me up for the Patient Access Programme, so it doesn't cost me anything.

In the U.S., the FDA approved it a bit earlier (I think the drug started out there). Perhaps some oncologists there are reluctant to switch patients from Firmagon because with the monthly injections, they know for sure patients are taking the ADT, while people can accidentally or deliberately skip pills at home.

In my case, I got the Firmagon injections at home anyway because of mobility issues — Homecare trained my spouse to do them, and she continued even after I was out of the wheelchair.

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I'll probably stay with the firmagon. the side effects look the same. I go every month for blood work, office visit then the shot. The area of the shot does get annoying. This last time the nurse put the spot a little higher then usual, seems to be better, not hitting on my belt like it usually does. Been a little rough last couple days, nothing we haven't been through already though. When having a rough day, I never know what side is causing it though. Like the rest of us, get through the day and hope tomorrow is better, those good days do come and I do so enjoy them. When I have a really really good day, I tell my wife to remind me of the day when it's not going good. Best to all.

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