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Anyone have or heard of MDS with 5q-syndrome?

Blood Cancers & Disorders | Last Active: Jun 18, 2024 | Replies (18)

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I am having mixed feelings about chemo versus transfusions what is the best option?

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Replies to "I am having mixed feelings about chemo versus transfusions what is the best option?"

janetlen | @janetlen | Jun 7, 2024

I have mixed feelings as well. When my hemoglobin dropped to 8.7, I felt awful. My oncologist set my transfusion point at 8 since I was symptomatic. I started Revlamid at the same time and it's working. The goal is to avoid transfusion dependence but I know at some point I will be there. I would have welcomed a transfusion at 8.7.