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@loribmt

Absolutely, I firmly believe we have to be our own advocates for healthcare. I know from experience, too, that a CBC without differential doesn’t necessarily paint the entire picture. So I’m glad you were able to finally get the diagnosis for SLL with a little more sleuthing. Your symptoms should have warranted more research with that first appointment. Fortunatly SLL is generally very slow to develop.
So you have other members in your family with SLL? That is one of the few forms of leukemia that may have a genetic link. Are you or any of the family members in treatment?

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Replies to "Absolutely, I firmly believe we have to be our own advocates for healthcare. I know from..."

Lori:

I have one sister with a CLL diagnosis who is in the watch and wait mode. She may actually have SLL but refuses to have a lymph node biopsy performed.

Another sister died from Acute Lymphoblastic Lymphoma many years ago prior to effective treatments. That form of lymphoma is extremely aggressive and hard to treat to this day.