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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1617)
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@jackie421blfdgurl

Well. It affects my balance I
Tend to fall alot I move around a lot in am and early afternoon before I go to work. Does not seem to help at all . My family Dr. Wants to prescribe gabapectin for neuropathy
Take at night. Have not gotten the pills yet!!!! But if I do will keep ya all posted. Thanks for your info. I only have been on tacrolimus for 3 yrs. This is one of the side effects. Other meds are not so hot either....

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Replies to "Well. It affects my balance I Tend to fall alot I move around a lot in..."
edwardlwallace | @edwardlwallace | Jun 6 10:47am

I agree, I have a bit of balance issue as well but like you said “ don’t read side effects 😊”
Way too many to read and cause worry right ?
We do what we can and better than the alternative we faced 👍🏽🙏🏽😊

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Rosemary, Volunteer Mentor | @rosemarya | Jun 6 7:23pm

@jackie421blfdgurl, Oops! I am so concerned when I think about you falling a lot. I fell, actually missed the bottom step and - down I went. Fractured wrist, and it is no fun! I don't want you to do that! Have you thought about using a cane for the time being, at least until the dizziness is resolved.
Remember to tell your transplant team about any additional medications. They could interfere with immunosuppressent meds or affect your labs.
I'm going to be thinking about you and hoping that you are soon dancing!

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Rosemary, Volunteer Mentor | @rosemarya | Jun 18 8:23am

Jackie, What did you decide about taking the Gabapentin? My son took it for a period of time after spine injury and don't know if he had side effects, but it was part of his recovery process.
Like you and @edwardwallace, I accept that medications have side effects, but not everyone experiences the same reaction to the meds. I guess what I'm saying is that it is a balance of risk vs benefit.

@jackie421blfdgurl - If you are still undecided, here is an idea for consideration: Talk to your doctor about trying the medication for a few weeks, and then checking in with him to report how you are responding. Then you can decide whether to continue, or to stop.
Does that sound like something you would consider trying?

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