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← Return to Dry mouth and bitter taste
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My labs show negative for Sjogrens, but I’ve read there are false negatives. A lip biopsy is another test. I’ll probably get tested. I have dry eye, but not dry anywhere else. Skin and mouth have always been medium. When I see dentist I have lots of saliva. But, I have other symptoms and every doctor I have seen ask me if I’ve been tested for Sjogrens.
I think our symptoms are quite common.
I also have hyperacusis! I’ve it for several years.
I also have chronic constipation since 2022. Treated with daily miralax. I’m now convinced it’s the damage from B12 deficiency . Also, eye issues. Severe dry eye. I have gotten blurry vision from 2 different recent medications. Odd, imo.
Now, almost daily runny watery nose, phlegm in throat, congestion.
Last summer I had terrible skin rashes.
There has to be a way to figure this out! I hope you can find some answers. Please post if you will.
Replies to "My labs show negative for Sjogrens, but I’ve read there are false negatives. A lip biopsy..."
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Yes, I have also read sometimes Sjogrens doesn’t show up on blood tests. I was somewhat encouraged that my dry mouth has improved, and figured maybe not Sjogrens for me. My eyes are dry and I lubricate all day, and usually once during the night. My skin has changed a lot too. It’s now dry, and thin and prone to bruising.
My low B12 was discovered ten years ago. I had taste issues and vision issues, as well as lots of joint pain. All resolved pretty well after a few months of supplementation.
After I had Covid everything came roaring back, plus more. I still supplement with B12 but it does not have the same result. I also had skin rash, loss of taste and smell but those things did clear.
I see my PCP next Monday and I’m going to ask about Linzess for my extreme constipation. I’ve had that develop since Covid too.
For me now it’s my eyes, ears and gut that keep me incapacitated.
So far, like you, no real answers.
I will definitely post anything new and any treatment that works for me.
I’ve been going to doctor after doctor for over two years and it is hard to be positive. I’m sure some of my damage will be permanent even though some symptoms did clear. I really doubt my hearing and vision will return. If tinnitus and hyperacusis would abate I’d have an easier time adjusting. That is what keeps me dizzy and distressed.
I’ll keep you updated.