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DiscussionCaring for spouse with Parkinson's: Some days he's overwhelmed
Parkinson's Disease | Last Active: Jan 7 2:06am | Replies (14)Comment receiving replies
Replies to "You have been immersed in Parkinson's for a long time. I wish the experience would make..."
Lewy Body Disease was explained to me as a form of dementia that is different for everyone who has Parkinson's. My Dad would see people and imaginary dogs. My brother explained he saw a strange light/white something. He still goes to church and helps others. He is a kind soul and would give you the shirt off his back. The last time I saw him he was in a frozen state. He did not blink or respond to anyone. His mouth was quivering. He calls my husband to check on him. He truly is an awesome man. I love them both. I hope that helps. My heart goes out to you. Take care of yourself.
LBD is similar to Alzheimers or Dementia. They usually use the drug that is used for most patients..but be careful and watch the symptoms you see and record it in a diary or wherever you write down changes. My Dad saw a Dog and another person.He once said it was God talking to him. My brother saw light white something. We could never get a clear idea. He now has mean outbursts and sometimes he seems perfectly normal. It is a frustrating disease. Especially Parkinsons in general. They have very vivid dreams and sometimes need meds for that. The staring and not blinking is what I saw my brother have this year. It was like he was "FROZEN". I hope that helps. Each day is different. Try to find a good friend or family member to be your relief. You might need to get out or just take a nap. Look into the Parkinsons Association for reading and texting info such as pod casts. Find your chapter near you. I hope this helps. Much love ur way!
@s100 Here is some information from Mayo Clinic on Lewy Body dementia.
https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025
Do you have any help or any outlet for yourself?