You have been immersed in Parkinson's for a long time. I wish the experience would make taking care of you husband easier but likely the knowledge can add to the stress and anxiety. There are so many emotions swirling in us. Caring,love and wanting to help mixed with exhaustion, frustration, loss, anger, guilt to name a few.
My husband has only had diagnostic symptoms for 4 years - but the general exhaustion, slow loss of executive function for much longer. As a highly educated Ph,D, he was able to mask the symptoms for a long time.
Can you tell me more about Lewy Body disease.
Wishing you strength, patience and boundless love.