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@susancurrit

I thank you for your words! We got home on Monday and I have walked the past two days with my husband's help! He says, "Do you want to walk" My answer is always yes! We are walking inside Home Depot and Walmart early in the morning so that I can get at least 2K steps a day.... I read somewhere here that it was a requirement to walk out of the hospital with some strength! Not sure where I read it but I believe being strong is the only way to get through this disease!! I may have listened to someone's bone marrow transplant journey on YouTube! Thank you again Lori for your words! They are giving me hope and encouragement.

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Replies to "I thank you for your words! We got home on Monday and I have walked the..."

Quite honestly, Susan, it was demoralizing for a few weeks when I was reduced to riding in a wheel chair for my ‘short walks’ to the clinic daily. I remember not even being able to stand up at the desk to grab the sign-in clip board for a couple days. But that then became a stamina goal…one of many including weaning off the chair rides. I’d ride for a ways, then push it for support until I could waddle with just holding my arm and then, fierce independence! 😅 I kept the chair in my hotel suite ‘just in case’ for another month and then had a Rocky moment of returning the chair and running up the flight of stairs in the main Gonda building without getting winded!
I know you’re not familiar with that building but for someone who was bedridden and weak at the start of the adventure, it was quite a feat! So you may have some weak moments ahead too but just keep persevering and they’ll be behind you in no time! Here are my Rocky Balboa moments in photos. 😉