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Dry mouth and bitter taste

Ear, Nose & Throat (ENT) | Last Active: Aug 6 1:05pm | Replies (64)
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@dloos

I have not seen a rheumatologist. About the only specialist I have not seen.
Low B12 does a lot of damage, however I don’t think they really know how much you can bounce back. Keep up with your supplementation. My taste is not what it was, but it is pretty good now.
I have been tested for Sjogrens three times and always come up negative.
For now the things that are driving me crazy are tinnitus, hyperacusis, blurry vision and horrible constipation.
It seems there is no relief.

My condition continues to get worse in most ways.

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Replies to "I have not seen a rheumatologist. About the only specialist I have not seen. Low B12..."
celia16 | @celia16 | Jun 5 6:36pm

My labs show negative for Sjogrens, but I’ve read there are false negatives. A lip biopsy is another test. I’ll probably get tested. I have dry eye, but not dry anywhere else. Skin and mouth have always been medium. When I see dentist I have lots of saliva. But, I have other symptoms and every doctor I have seen ask me if I’ve been tested for Sjogrens.

I think our symptoms are quite common.
I also have hyperacusis! I’ve it for several years.
I also have chronic constipation since 2022. Treated with daily miralax. I’m now convinced it’s the damage from B12 deficiency . Also, eye issues. Severe dry eye. I have gotten blurry vision from 2 different recent medications. Odd, imo.

Now, almost daily runny watery nose, phlegm in throat, congestion.
Last summer I had terrible skin rashes.

There has to be a way to figure this out! I hope you can find some answers. Please post if you will.

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