I appreciate your point of view. I know that everyday can be differentto the extent of exhaustion for us both. I have to do things he used to do and I see frustration in his eyes and I think we really both did so many things. The hardest for him is having to allow me to help him with bathing , shaving and sometimes dressing. I can always tell when he has difficulty, because he looks at me with a look that says "help me". His meds work..but when he starts to lose the effect of increased dopimine..he is like someone with a low blood sugar.I have dealt with a long distance with my Dad and my brother who have Parkinsons as well . My Dad died 6 years ago. My brother however is 66yo and in stage 5 with hospice. He has lewy body disease. He is totally different then my Dad..We just saw him a couple of weeks ago. It was heartbreaking. My husband is nowhere near this level. I liked the way you mentioned what your neurologist said. Thank you!!