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Dry mouth and bitter taste

Ear, Nose & Throat (ENT) | Last Active: Aug 6 1:05pm | Replies (64)

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@celia16

I also share some of the issues as you! Have you seen a Rheumatologist? I have an appointment to be evaluated for Sjogrens. Idk……I also have dry eye.

UPDATE. I’m glad I got in to see the neurologist, but devastated by the news. He’s pretty sure a Vitamin B12 deficiency caused my hand and foot issues. I got my levels up last year, but apparently that wasn’t enough. Increasing my dosage……so my foot and hand issues are permanent and nothing can improve them. ………….. Having trouble digesting that. Very sad. So, my taste issue that seemed so huge is now not so big. The big question is whether the taste problem is also caused by my Vitamin B12 deficiency…..the doctor didn’t know. And, did it cause my chronic constipation? He didn’t know.

I am glad I got in and discovered what is going on. I need a few days to regroup and figure out my next steps.

Oh, one bright spot. One of the staff members lost their sense of smell for a year, then it returned to normal. It happened right after they got covid.

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Replies to "I also share some of the issues as you! Have you seen a Rheumatologist? I have..."

I have not seen a rheumatologist. About the only specialist I have not seen.
Low B12 does a lot of damage, however I don’t think they really know how much you can bounce back. Keep up with your supplementation. My taste is not what it was, but it is pretty good now.
I have been tested for Sjogrens three times and always come up negative.
For now the things that are driving me crazy are tinnitus, hyperacusis, blurry vision and horrible constipation.
It seems there is no relief.

My condition continues to get worse in most ways.