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Myxofibrosarcoma: What treatments did you have?
Sarcoma | Last Active: Oct 7 12:35pm | Replies (104)Comment receiving replies
@ltj61 My doctors are at Milwaukee's Aurora St Luke's Medical Center. Go cheeseheads.
I was diagnosed with a Myxofibrosarcoma in my right thigh last November. I remember how scared I was of that initial meeting with the entire Sarcoma team. One of the first things I asked was how many of my type of Sarcoma they had treated and nobody was offended. At the end, we - not just they- had a treatment plan. I had radiation and surgery.
Early on, I reached out to Imerman's Angels and have/had a wonderful one on one mentor who had gone thru pretty much the same. Please check them out if you think that would help you https://imermanangels.org/. Best Wishes.
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@verena I actually had my appt today with the radiation oncologist, nurse practitioner and medical oncologist. My PET scan thank goodness came back clear so I’ll be starting radiation followed by surgery as well. Both doctors are confident the risk of recurrence is low. I feel so much better having the info and an actual plan. The waiting and fear of unknowns was literally hell for my family and me. Thank you so much for reaching out. Connecting with people going through or who have gone through this is so helpful. Best wishes to you as well!