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How long from diagnosis of AML typically comes the BMT?
Blood Cancers & Disorders | Last Active: Jun 14 5:42am | Replies (35)Comment receiving replies
Well, I am sure I will know by the end of July!! I will let you know what my experience is. Right now we found an amazing Condo that we will rent for the four months total that we will be in Phoenix. We will look at it on Monday. Looking for a place to stay is so tough. I do not want more furniture, Kitchen ware, etc. I want a reasonably priced place to stay. We believe we found one where our children can visit and help with my care to give my husband a rest every so often. I love him dearly, but knowing what a care provider goes through, he needs a rest.
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The condo sounds the ideal for you and your husband for this adventure. That will be a big hurdle out of the way. I understand exactly how you feel about your husband. My husband and I were married 45 years at the time (just celebrated our 50th anniversary) and he was a solid rock for me through all of this…still is. Though the demand is less now, but I watched him age dramatically that first year. So having a place where he can have a bit of normalcy is perfect. It eases your mind too…though let me tell you, this is the one time you can be a little selfish to completely focus on you. Not something mom’s get to do often.
I have some information you might find helpful for what to pack for long term stays away from home. You’ll also have classes for nutrition and safety given by your transplant team. Avoiding infection is the most critical factor so sanitation in the condo will be a must. So there are guidelines for patient safety that will be reviewed with both of you. To give you a head start, I’m posting a few links for you.
This link to Mayo Clinic’s Caregiver guide is fairly comprehensive as to the needs of the patient for safety with food, living conditions and guidelines for getting through some of the earlier challenges.
When you click on the link, check the headings and the menu listings. You’ll see:
Welcome. Caregiver support, Transplant Journey and More
When you click on More, you’ll see specific details for the Phoenix Campus!
Also, make sure when you look to the “Transplant Journey” that you scroll down to Allogenic Transplant segment.
https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/support/#ch-tab-navigation
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Another great guide for the Post Allogenic patient care is from Memorial Sloan Kettering. https://www.mskcc.org/pdf/cancer-care/patient-education/leaving-hospital-after-your-allogeneic-transplant
This link has some repetitive information but it also has detailed lists of what to pack for long term. I posted this a couple months ago to a newer member who just went through her Allo transplant, @katgob. She’s more than halfway past the critical 100 day point!
https://connect.mayoclinic.org/comment/1059221/
Let me know if there’s anything else I can do for you.