← Return to I've had CML for 20 years and want to encourage others

Discussion
Comment receiving replies
@loribmt

Oh gosh, you have a very stoic son. And I can certainly understand with all the stress on his shoulders that it was difficult to differentiate that from a potential illness developing.
I hope he gets his medication approved again so he can keep on with treatment. Patients shouldn’t have to beg for their meds…that is so frustrating. I had one of those targeted meds too. It was like jumping through hoops every month to get it approved one more time and when you’re not feeling well, that’s the last thing you want to do…acrobatics for health care!
I wish him all the best as he goes forward. One more class and he can get that diploma…but good luck studying with a new baby, huh? As his mom I can imagine you’d love to harken back to the days where you could cuddle him on your lap and let him know everything will be ok. He’s too big for your lap now, but he knows you’re looking out for him and will do what you can to help him and his new little family past this bump in the road.
Will you keep me updated with his journey?

Jump to this post


Replies to "Oh gosh, you have a very stoic son. And I can certainly understand with all the..."

Gavin start Bosutinib next week.. his white blood cells number are going down.. also watching his Uric acid levels and on a medication for Uric acid. He tired and hurts , we have home health coming in and a social worker..a change of life style and some education. Still waiting on the baby.. hopefully this weekend! Felt like a rollercoaster ride of emotions last 3 weeks. We all seem to be doing well. I am on FMLA but I been back at work.. lots of support and prayers