I found out about 5 years ago that I have Celiac. Before that it was not a pleasant experience. It took time to adjust but my wife has done a great job. I have the app on my phone that when in doubt I scan the product. There is nothing that I crave that we can't find gluten free. If I'm in doubt I have no problem turning it down, not worth it for sure. It took alot of researching but well worth the time. I'm big on the "treats" and there certainly is a lot of them out there. Best to all.
I also have Celiac. I was first found to be lactose intolerant. Years later genetic testing showed Celiac. I enjoy the diet as I prepare my own food. It was harder before I became a widow but I tried giving my husband foods he liked and sometimes I had to prepare 2 meals to be able to do that and not cheat!
I have learned about what Celiac unchecked can do throughout the body the hard way. Having read ingredients, I prefer to stay away from gluten free products that are substitutes for treats. Each of us have some similar and some different responses to different ingredients. I have found it takes detective work at times to uncover what has caused an unwelcome reaction. I do know I am at my best when I am careful about what I eat.
@barbbielor
Oh! You are good to avoid those gluten free treats. Sometimes I just want an Oreo!
I was diagnosed in 2008 and back in “the day” gluten free bread was the consistency of cardboard. Heavy, dense, flavorless stuff. I am so grateful for the variety of products one can buy today and still maintain rigorous adherence to the diet.
I’m frankly surprised that more restaurants don’t adapt recipes to make sauces gluten free. If one can avoid cross contamination by avoiding places that are oblivious or the cuisine is dependent on gluten ingredients, you can enjoy more than a salad.
Progress!
As a Celiac, eating gluten free is an essential.
We also know that as we age, Celiac or not, our bodies are less able to digest gluten.
Would it not follow then, that long term care facilities provide a full, gluten free menu?
Sadly, regular, glutinous meals are the norm!
A problem as I inch closer to this living requirement!
It's not only long-term care. Some hospitals won't provide GF meals unless someone has a diagnosis of celiac. I have celiac, but no formal diagnosis because the GI 14 years ago thought because I wasn't anemic that I had diverticulosis (still none), so only GF for a week and one biopsy sample of my small intestine (the celiac was new, triggered by H1N1, so minimal GI damage). I have the HLA DQ8 0302 haplotype, but that just means that I am at risk for it; the genetic test doesn't confirm celiac because ~30-40% of people have HLA DQ2 or DQ8. There is no way that I'm making myself sick for weeks just to confirm something that I have. I have celiac listed on my medical charts, but some doctors won't accept that without endoscopy and bloodwork. It is easier convincing them now that I have collagenous colitis (8 years). https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10039793/#:~:text=Background,based%20cohort%20studies%20are%20rare.
It's not only long-term care. Some hospitals won't provide GF meals unless someone has a diagnosis of celiac. I have celiac, but no formal diagnosis because the GI 14 years ago thought because I wasn't anemic that I had diverticulosis (still none), so only GF for a week and one biopsy sample of my small intestine (the celiac was new, triggered by H1N1, so minimal GI damage). I have the HLA DQ8 0302 haplotype, but that just means that I am at risk for it; the genetic test doesn't confirm celiac because ~30-40% of people have HLA DQ2 or DQ8. There is no way that I'm making myself sick for weeks just to confirm something that I have. I have celiac listed on my medical charts, but some doctors won't accept that without endoscopy and bloodwork. It is easier convincing them now that I have collagenous colitis (8 years). https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10039793/#:~:text=Background,based%20cohort%20studies%20are%20rare.
Oh, I am so sorry... you have the two main problems that we face in modern medicine:
1. Getting the diagnosis.
2. Needing more research so the modern medicine will get the diagnosis.
It is a dead end street and so frustrating!!
I agree, making yourself sick, so the paperwork matches reality, is NOT an option!
If you ever, and hopefully not, you land in hospital, there are some companies that deliver GF meals...I have used that in days gone by.
Cheers to you for doing what you wisely know is necessary!
@barbbielor
Oh! You are good to avoid those gluten free treats. Sometimes I just want an Oreo!
I was diagnosed in 2008 and back in “the day” gluten free bread was the consistency of cardboard. Heavy, dense, flavorless stuff. I am so grateful for the variety of products one can buy today and still maintain rigorous adherence to the diet.
I’m frankly surprised that more restaurants don’t adapt recipes to make sauces gluten free. If one can avoid cross contamination by avoiding places that are oblivious or the cuisine is dependent on gluten ingredients, you can enjoy more than a salad.
Progress!
Have you tried the 'Glutino' line of products?
They have an 'Oreo ' cookie that is addictive.
Don't know if they are available in the U.S., but maybe online?
...and No, I'm not a shareholder!
Oh, I am so sorry... you have the two main problems that we face in modern medicine:
1. Getting the diagnosis.
2. Needing more research so the modern medicine will get the diagnosis.
It is a dead end street and so frustrating!!
I agree, making yourself sick, so the paperwork matches reality, is NOT an option!
If you ever, and hopefully not, you land in hospital, there are some companies that deliver GF meals...I have used that in days gone by.
Cheers to you for doing what you wisely know is necessary!
Thanks. My brother had cancer a few years ago and the hospital staff said he couldn't have GF food because of no diagnosis. He hadn't been to a doctor in decades (paranoia), so no diagnosis. It is a lot easier in large metropolitan areas to get GF food (and ingredients) so I'm set. I wish I could find a bike or travel touring option for GF; I gave up bike tours because their GF was gluten lite.
Have you tried the 'Glutino' line of products?
They have an 'Oreo ' cookie that is addictive.
Don't know if they are available in the U.S., but maybe online?
...and No, I'm not a shareholder!
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I found out about 5 years ago that I have Celiac. Before that it was not a pleasant experience. It took time to adjust but my wife has done a great job. I have the app on my phone that when in doubt I scan the product. There is nothing that I crave that we can't find gluten free. If I'm in doubt I have no problem turning it down, not worth it for sure. It took alot of researching but well worth the time. I'm big on the "treats" and there certainly is a lot of them out there. Best to all.
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Like -
Helpful -
Hug
2 ReactionsI also have Celiac. I was first found to be lactose intolerant. Years later genetic testing showed Celiac. I enjoy the diet as I prepare my own food. It was harder before I became a widow but I tried giving my husband foods he liked and sometimes I had to prepare 2 meals to be able to do that and not cheat!
I have learned about what Celiac unchecked can do throughout the body the hard way. Having read ingredients, I prefer to stay away from gluten free products that are substitutes for treats. Each of us have some similar and some different responses to different ingredients. I have found it takes detective work at times to uncover what has caused an unwelcome reaction. I do know I am at my best when I am careful about what I eat.
-
Like -
Helpful -
Hug
3 Reactions@barbbielor
Oh! You are good to avoid those gluten free treats. Sometimes I just want an Oreo!
I was diagnosed in 2008 and back in “the day” gluten free bread was the consistency of cardboard. Heavy, dense, flavorless stuff. I am so grateful for the variety of products one can buy today and still maintain rigorous adherence to the diet.
I’m frankly surprised that more restaurants don’t adapt recipes to make sauces gluten free. If one can avoid cross contamination by avoiding places that are oblivious or the cuisine is dependent on gluten ingredients, you can enjoy more than a salad.
Progress!
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Like -
Helpful -
Hug
3 ReactionsDiagnosed with Celiac Disease 3 years ago by Endoscopy.
Changed my whole life.
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3 ReactionsAs a Celiac, eating gluten free is an essential.
We also know that as we age, Celiac or not, our bodies are less able to digest gluten.
Would it not follow then, that long term care facilities provide a full, gluten free menu?
Sadly, regular, glutinous meals are the norm!
A problem as I inch closer to this living requirement!
-
Like -
Helpful -
Hug
2 ReactionsIt's not only long-term care. Some hospitals won't provide GF meals unless someone has a diagnosis of celiac. I have celiac, but no formal diagnosis because the GI 14 years ago thought because I wasn't anemic that I had diverticulosis (still none), so only GF for a week and one biopsy sample of my small intestine (the celiac was new, triggered by H1N1, so minimal GI damage). I have the HLA DQ8 0302 haplotype, but that just means that I am at risk for it; the genetic test doesn't confirm celiac because ~30-40% of people have HLA DQ2 or DQ8. There is no way that I'm making myself sick for weeks just to confirm something that I have. I have celiac listed on my medical charts, but some doctors won't accept that without endoscopy and bloodwork. It is easier convincing them now that I have collagenous colitis (8 years). https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10039793/#:~:text=Background,based%20cohort%20studies%20are%20rare.
-
Like -
Helpful -
Hug
1 ReactionOh, I am so sorry... you have the two main problems that we face in modern medicine:
1. Getting the diagnosis.
2. Needing more research so the modern medicine will get the diagnosis.
It is a dead end street and so frustrating!!
I agree, making yourself sick, so the paperwork matches reality, is NOT an option!
If you ever, and hopefully not, you land in hospital, there are some companies that deliver GF meals...I have used that in days gone by.
Cheers to you for doing what you wisely know is necessary!
-
Like -
Helpful -
Hug
1 ReactionHave you tried the 'Glutino' line of products?
They have an 'Oreo ' cookie that is addictive.
Don't know if they are available in the U.S., but maybe online?
...and No, I'm not a shareholder!
-
Like -
Helpful -
Hug
2 ReactionsThanks. My brother had cancer a few years ago and the hospital staff said he couldn't have GF food because of no diagnosis. He hadn't been to a doctor in decades (paranoia), so no diagnosis. It is a lot easier in large metropolitan areas to get GF food (and ingredients) so I'm set. I wish I could find a bike or travel touring option for GF; I gave up bike tours because their GF was gluten lite.
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Helpful -
Hug
1 ReactionActually, Oreo has GF Oreos as well now. A bit too much sugar for me but they look like Oreos.
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2 Reactions