← Return to Stiff Person Syndrome: Want to connect with others

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@sheeva888

Ha! Being in warmer climates definitely seems helpful for SPS patients but the sun doesn’t penetrate the muscles like other heat modalities. Some people find Botox injections and/or acupuncture are helpful, but they don’t work for me. You probably need a diagnosis for Botox but not for acupuncture.

FYI-My EMG was negative and my GAD 65 was negative, so I was initially diagnosed with atypical, classical SPS. Basically I exhibited all of the symptoms and responded to Valium. Many other conditions were ruled out and tests were negative. But I am now positive for GAD. My level was 0 in 2019 at diagnosis and is now 230 (Elisa test).

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Replies to "Ha! Being in warmer climates definitely seems helpful for SPS patients but the sun doesn’t penetrate..."

@sheeva888 I got an appointment with a movement specialist neurologist for September. I’m very happy about that.

However, this SPS is only one of 3 diseases I have that are going to put me in a nursing home.
Since the beginning of this year I have been diagnosed with Alzheimer’s (mild), Ataxia, and now this.

I’m almost 75, and live alone (I love it). I have a social worker who is guiding a bit, and 1 son who is trying.