Connect
← Return to Has anyone had Paget's disease of the vulva?
Discussion
Has anyone had Paget's disease of the vulva?
Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)Comment receiving replies
How do you know it is not invasive? Did they test lymph nodes? I 'm hoping I can get some sort of treatment like you are doing. I'm not a candidate for surgery as I am 85, on Eliquis (blood thinner) because of A-fib. Have hiatal hernia, diabetes, arthritis and many other old-age type of disorders.
Replies to "How do you know it is not invasive? Did they test lymph nodes? I 'm hoping..."
Please see reply below to @joyceinil
Connect
I actually saw my oncologist yesterday after a CT scan and blood tests. Not the surgeon or hospital where the Paget's was discovered. Gynecologist are centred at a different hospital. My oncologist has ordered a biopsy of a lymph gland in my neck, a PET scan which will apparently show signs if there is cancer. Plus an MRI. He is very concerned (as am I) about cancer not necessarily related to the Paget's. He said there's no way to know it is invasive without tests like biopsies, if I understood correctly. That blood tests aren't precise enough... anyhow - I am shaken - but so thankful not to, at 77 1/2 have gone for the horrific, very large surgery that was suggested for Paget's. I may be dealing with an entirely different beast - and will know more after the PET scan, etc.