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DiscussionAnyone have or heard of MDS with 5q-syndrome?
Blood Cancers & Disorders | Last Active: Jun 18, 2024 | Replies (18)Comment receiving replies
Replies to "Hi! I am impressed you have been on "Watch and Wait" for so many years. Revlamid..."
My husband had been on Luspatercept and the side effects are severe fatigue and shortness of breath and quite possibly a skin rash which he is still on Prednisone for because it would not clear up. His hematologist wants him to resume it but I am very much against it. I can see what it does to him. He still needs transfusions.