Welcome, @mamapocho01. I moved your question about myelodysplastic syndrome (MDS) with deletion 5q to this existing discussion:
- Anyone have or heard of MDS with 5q-syndrome? https://connect.mayoclinic.org/discussion/anyone-have-or-heard-of-mds-5q-low-risk/

I did this so you can connect with other members like @janetlen and @mtksnider who have a similar diagnosis.

As you know, people with this subtype of MDS have low numbers of red blood cells, and the cells have a specific mutation in their DNA. Until the discovery and approval of lenalidomide (Revlimid), patients were treated with repeated red blood cell (RBC) transfusions. Now most patients can be treated successfully with lenalidomide.

@mamapocho01, I believe that only other options are repeated RBC transfusions or possibly bone marrow transplant.

When do you start?