← Return to Vonjo (pacritinib) and diarrhea: Do probiotics help?

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Profile picture for snakebite @snakebite

COS, Thank you for your response. It was very helpful to me. It sounds like you and I have had very similar experiences. My diarrhea for the first year+ on Vonjo was not too bad... more of an annoyance. I did a long session of also taking Dacogen along with the Vonjo. I reached a point where the Dacogen was doing more harm than good, so it was stopped. After stopping, but continuing with the Vonjo, my CBC went up very rapidly, to a low normal state. I felt better than I had in many years... however, that was when the Diarrhea got much worse. So much so that I was becoming Home bound because I just couldn't take a chance of getting caught out away from the toilet. I've started taking Lomotil (Diphenoxylate-Atropine 2.5). It has not stopped the Diarrhea, but has helped a great deal. I am trying to do the natural thing using Bananas, broccoli etc... even Kimchi. They help, but I would like to have even more relief if possible. THAT is why I was asking about the Pre and Probiotics that seem to be available by the dozens, and range in price from this to that. I may just pick one and give it a try. Again, thank you for your response. I wish you the very best in your situation.

Snakebite

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Replies to "COS, Thank you for your response. It was very helpful to me. It sounds like you..."

@snakebite
Snakebite are you still taking Vonjo, how long did it take untill you started getting results. My husband has MF his platelets stay low. Platelet transfusions twice a week.