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I would like to hear from anyone who has had a lung transplant

Transplants | Last Active: Feb 7 6:37am | Replies (46)
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@ktgirl

Ok. Yeah you were definitely more critical than I am. I belong to a Facebook group with the Pulmonary Fibrosis Foundation and one of the moderators said to check into the transplant program right away so that's what I figured I'd do. I can understand why they would want the tests done beforehand. Thanks again. You've been a great help. 😊

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Replies to "Ok. Yeah you were definitely more critical than I am. I belong to a Facebook group..."
kathy22 | @kathy22 | Jan 30 9:13pm

I was listed very low on the unum scoring. #17 in April 2023. But July 2023 I got my call for transplant. When they opened me up and got a look at my lungs they said they were much worse than they thought and were shriveled up like a couple of prunes.
So yes get assessed and hopefully listed asap.

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