The world ain't all sunshine and rainbows: Meet @tomrennie

May 22 8:00am | Teresa, Volunteer Mentor | @hopeful33250 | Comments (27)

TomRennie and his sister

TERESA: What brought you to Mayo Clinic Connect?

@tomrennie: Mayo Clinic has been my primary care provider for about 20 years. At the initial consult with my oncologist, a brochure about Mayo Clinic Connect was included in a folder of information.

TERESA: What motivates you to take part in Mayo Clinic Connect?

@tomrennie: I want to learn about my cancer (pancreatic neuroendocrine tumors that have spread to my liver). I am a student as well as a patient. There is a lot of misinformation on the internet. I believe patients should educate themselves, but also let the doctors do the doctoring and work with them. 

Diagnosis and treatment are a process. I want to help others move through the process so treatment can begin as quickly as possible. I want to share my journey with others and learn from theirs. 

TERESA: What about Mayo Clinic Connect makes you feel comfortable to share and to be open with the community?

@tomrennie: We are all in this together. I am part of the cancer family. Let’s help each other. There is someone else going through what you are.

TERESA: What support groups do you participate in?

@tomrennie: I participate in the Neuroendocrine Tumors (NETs) support group. 

I also follow the Pancreatic Cancer and Gynecologic Cancers support groups. I have friends with those cancers. We share ideas and information together. All are now being treated at Mayo Clinic after joining Connect themselves. 

TERESA: Tell us about a meaningful moment on Mayo Clinic Connect.

@tomrennie: There are several moments that have greatly influenced me, but @pavlina60’s journey has impacted me the most. Her journey shows a tremendous desire to live. 

Fighting through everything with a positive attitude is a choice. It is easy to feel like a victim. It is easy to blame doctors, blood tests, scans, etc. for a cancer diagnosis or misdiagnosis. Accept it. Work with your care team or find one you can work with for the best possible treatment. In my opinion, blame and anger are a waste of emotions and energy. Pavlina’s journey reinforces those beliefs.

TERESA: What surprised you the most about Mayo Clinic Connect?

@tomrennie: I am surprised when people self diagnose and don’t listen to their doctors. I can find anything I want on the internet to support what I believe. But I am not a doctor. I haven’t spent my life studying cancer let alone become an expert in NETs. My doctors are my teachers, and I am their student. I prepare and do homework for every appointment. I always let the doctors talk first. I find most of my questions get answered. We can then focus on my treatment plan. I value their time. I want to get in and out of the appointment, so the doctors can save someone else’s life. I’m not the only person in the world with cancer.

TERESA: What energizes you, or how do you find balance in your life?

@tomrennie: I am just happy to be alive. I almost wasn’t. I was sick for over 4 years. I lost over 140 pounds. Family and friends were afraid to hug me. They didn’t want to hurt me. My little sister has down syndrome. If I die today, I will have been blessed with opportunities in life that she never had. I love my wife, my family and my friends. I am truly blessed to be loved back. I am going to fight with everything I have to live. My loved ones deserve that from me. 

TERESA: Tell us about your favorite pastime or activity.

@tomrennie: Hiking with our dog. I live in a beautiful area of Arizona. We have hiking trails in very close walking distance. At first, my wife had to assist me to just get the mail out of the mailbox. I now can take 5 mile hikes. My dog only knows me as sick, so he watches my every move. If he senses that I am struggling, he will sit down. He won’t move until he thinks that I can walk again. He is usually right. The wildlife and scenery soothe the soul.

TERESA: Do you have a favorite quote, life motto or personal mantra?

@tomrennie: I grew up in inner city Philadelphia. Rocky is one of my favorite movies. A friend gave me a print of Rocky at the top of the Philadelphia Museum of Art's steps with a raised closed fist. It hangs on my “sickroom” wall and reads:

The world ain't all sunshine and rainbows. It's a very mean and nasty place and I don't care how tough you are, it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain't about how hard ya hit. It's about how hard you can get hit and keep moving forward. How much you can take and keep moving forward. That's how winning is done!

TERESA: If Hollywood made a movie about your life, who would you like to see cast as you?

@tomrennie: Sylvester Stallone. He wouldn’t have to do a lot of acting.

TERESA: What do you appreciate the most in your friends?

@tomrennie: They are my family. The good ones stick by you no matter what.

TERESA: What food can you simply not resist?

@tomrennie: Chicken parmesan

TERESA: What do you love about where you live or vacation?

@tomrennie: I got married on a sailboat in a harbor of the island of Tortola in the British Virgin Islands over 30 years ago. I have visited a few other Caribbean islands since. We enjoy the warm blue water and people in the Caribbean. It is easy to relax there.

TERESA: Puppies or kittens?

@tomrennie: Puppies. I’m allergic to cats

 

Member Spotlights feature interviews with fellow Mayo Clinic Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.

See more Member Spotlights.

Interested in more newsfeed posts like this? Go to the About Connect: Who, What & Why blog.

@leahmeyer1981

I was diagnosed with Pudendal Nerolgia in 2018 & have been to numerous doctors & have had four nerve blocks with no success.It seems to be getting worse.Wondering if you can help me with this debilitating problem?

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@leahmeyer1981, if you would like to seek the opinion of Mayo Clinic medical experts, please submit a request here: http://mayocl.in/1mtmR63

Mayo Clinic Connect is a forum to connect with other patients and to give and get support. To connect with others talking about pudendal neuralgia, see these related discussions in the Chronic Pain support group:
- Anyone out there diagnosed with Pudendal Neuralgia?
https://connect.mayoclinic.org/discussion/anyone-out-there-diagnosed-with-pudendal-neuralgia/
See all related discussions: https://connect.mayoclinic.org/search/discussions/?search=pudendal%20neuralgia

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Wow @tomrennie, this is an amazing spotlight that really hits home with me. You have eloquently stated your participation in your healthcare as student and patient and I agree with you 100%. I hope every cancer patient reads this spotlight and is motivated to follow your lead. I love the Stallone quote and it is so very relevant to our cancer battles. I wish you many, many more years of enjoying nature with your canine walking partner. Thank you for sharing your story here.
Susan

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Very well said on all counts, @tomrennie !

The Rocky motto reminds me of an observation about football Hall of Fame running back Walter Payton:

Although Payton ran for an NFL record 16,276 yards, he got knocked down almost 4000 times (average every 4.3 yards) but got back up and did it again.

Keep up the fight, and thanks for sharing your insights and inspiration here!

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@lorilang0707

That was an amazing post! You are motivating me! Thank you.

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Hi @lorilang0707, welcome. What brings you to Mayo Clinic Connect? Can I help connect you to a support group or members?

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is there a connect group re how to get an appt in neurology in jacksonville? i called and spent about 40 min on the phone and got nowhere. A neurosurgeon in south FL recommended i have radioneurisurgery without even examining me or discussing my complex risk factors. She obviously is not going to refer me to Mayo and the scheduler made clear “no referral”/no appointment.

I am going to be at mayo Jacksonville june 20–21 and would very much appreciate a neuro consult. i have neuro-opthamologist notes and images showing a mass in my brain. Can someone help me with logistics?

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@elisabeth007

is there a connect group re how to get an appt in neurology in jacksonville? i called and spent about 40 min on the phone and got nowhere. A neurosurgeon in south FL recommended i have radioneurisurgery without even examining me or discussing my complex risk factors. She obviously is not going to refer me to Mayo and the scheduler made clear “no referral”/no appointment.

I am going to be at mayo Jacksonville june 20–21 and would very much appreciate a neuro consult. i have neuro-opthamologist notes and images showing a mass in my brain. Can someone help me with logistics?

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Hello @elisabeth007

In order to request an appointment, please try this link where you will find an online request form as well as phone numbers for appointments at all three of the Mayo locations,
http://mayocl.in/1mtmR63
I would also recommend that if your current specialist will not give you a referral that you ask your PCP for a referral.

Also, I suggest that you post any question about visiting Mayo in the following support group,
--Visiting Mayo Clinic
https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/

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Thank you for sharing and inspiring us all. Life can sure seem like a lot more valleys than mountains sometimes. It can be challenging to maintain the don't give up and keep going spirit.....thank you for your story and insight.

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In 2019 I was diagnosed with anemia every month I did blood test was doing so well oncologist said 6 months for blood tests things have changed recently pre leukemia low risk will be starting on chemo with lenalidomide should I get 2nd opinion?

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@mamapocho01

In 2019 I was diagnosed with anemia every month I did blood test was doing so well oncologist said 6 months for blood tests things have changed recently pre leukemia low risk will be starting on chemo with lenalidomide should I get 2nd opinion?

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@mamapocho01

Please direct this question to Mayo Connect's Blood Cancer Support Group at the following link,
https://connect.mayoclinic.org/group/blood-cancers-disorders/

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@colleenyoung

Hi @lorilang0707, welcome. What brings you to Mayo Clinic Connect? Can I help connect you to a support group or members?

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Hello, I was diagnosed with PD in 2023. I'm not sure what kind I have, its atypical. Not really sure what I'm looking for, just joined to see.

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