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Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Autoimmune Diseases | Last Active: Sep 24 3:33pm | Replies (878)
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@hospicenurse

Hi all, I have had seronegative RA diagnosis since 2012, altho many symptoms prior to diagnosis. Also have had hypothyroid problems since prior to 1972 and diagnosis of restless legs syndrome in 19–?? (I kicked like a mule!). Currently, at 79, my knees bother me a good deal. Enbrel helped me greatly, tho I no longer qualify for that Rx from the manufacturer. Am on Inflectra infusions q 8 weeks, and hoping for greater relief with that Rx.

My rheumatologist is terrific and very responsive to issues as they arise. I lucked out there! Marty

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Replies to "Hi all, I have had seronegative RA diagnosis since 2012, altho many symptoms prior to diagnosis...."
ferret911 | @ferret911 | Jun 3 3:12pm

I see you got a few responses. I agree that a dedicated subgroup would be valuable; there are too many varied responses/inputs on the Mayo site, all with different diagnoses. We need a dedicated negative RA subgroup. What are you doing to try to get Nayo to organize this? Clearly you’d need their agreement/help to organize this for us. As it is now, it’s very time consuming to screen the dozens of daily mixed inquiries. Have you tried to get Mayo to organize this? Can I help you?

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