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I've had CML for 20 years and want to encourage others

Blood Cancers & Disorders | Last Active: Oct 22 10:55am | Replies (100)
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@kaygrose

I am a 70yo female recently diagnosed with CML. 10 days ago I started taking Imatinib. The extreme fatigue hit like a wall starting about 3 days ago. It has truly been life-altering. I’m interested to know if others also experienced extreme fatigue and if it evened out any as their bodies acclimated to the med.

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Replies to "I am a 70yo female recently diagnosed with CML. 10 days ago I started taking Imatinib...."
Lori, Volunteer Mentor | @loribmt | Jun 2 10:36pm

Hi @kaygrose, I’ve looked through several replies by members taking Imatinib but haven’t found comments on fatigue.
There is another discussion you may want to read through with members who have CML. Many discuss Imatinib and also Sprycel

~Does Anyone Have CML?
https://connect.mayoclinic.org/discussion/does-anyone-have-cml/
Have you mentioned the extreme fatigue to your oncologist?

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suzie71 | @suzie71 | Jun 9 9:35am

Hi Kay: I have not been on here lately, but I was diagnosed in 1998 with CML, and I was only 52 at the time. I am now going on 77 this Nov. Imatinib is what got me through it all. I am now 6 years off of the Imatinib and holding a 0.000 undetectable status. I have to be checked constantly to be sure I am still TFR ( Treatment Free Remission). You or I should say I did get use to the fatigue. I had lots of bone pain in the beginning, and my doctor told me it was the Imatinib killing those cancer cells. There are various side effects, but the long range term of being treated is a good thing. CML is very treatable. Just take your pill everyday no matter how you feel. Rest if you need rest, and I learned to say NO to people who expected me to do more than I felt up to doing.

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