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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)

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@ameliae

No. I didn't try surgery. It's not unbearable. Itch and burn. Cannabis products prescribed help. The surgery would be massive including taking skin from my thighs. There has been very little experience with EMPD where I am. I suspect some people mis-diagnosed as I was for about 10 years. My life is good. I'm 77. going on 78. The idea that it just keeps coming back - I'm opting right now for quality of life. As far as I know it is not invasive. I get test results of scan next Friday.

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Replies to "No. I didn't try surgery. It's not unbearable. Itch and burn. Cannabis products prescribed help. The..."

How do you know it is not invasive? Did they test lymph nodes? I 'm hoping I can get some sort of treatment like you are doing. I'm not a candidate for surgery as I am 85, on Eliquis (blood thinner) because of A-fib. Have hiatal hernia, diabetes, arthritis and many other old-age type of disorders.