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Question about PMR in addition to other autoimmune disorders?
I understand that it is possible to have multiple autoimmune disorders. I'm wondering how many people have a dual diagnosis. I was diagnosed with reactive arthritis about 20 years before PMR was diagnosed.
There are several types of spondyloarthropathies and someone can have overlapping features of all of them. The following diagram explains it better than I can.
https://enthesis.info/pathology/spondyloarthropathies.html
I'm just wondering if anyone else has been diagnosed with multiple autoimmune problems.
My rheumatologist says it would be impossible to threat everything. Actemra was used to target PMR and it works well for me. My other autoimmune disorder(s) are usually treated with a TNF inhibitor. Humira is a TNF inhibitor but it didn't work that well for me.
My question is for people who have been diagnosed with multiple autoimmune problems. How was it decided which problem to treat given that different autoimmune problems are treated differently.
Were you given prednisone because it is more of a "all around" medication for inflammation? I don't think prednisone targets anything specifically. Prednisone targets inflammation regardless of the cause or the diagnosis.
PMR responds to prednisone but many other autoimmune problems respond to prednisone too. In my case, PMR wasn't the only problem. I'm not sure "isolated" PMR is very common given that so many other things cause inflammation.
This question could also apply to anyone who had their original diagnosis changed to something else. I'm wondering if your doctor ever considered the possibility of multiple autoimmune problems?
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I did all of that too. I don't eat much of anything. I probably need to cut out the sweets too if I expect to lose the prednisone weight gain
Aquacise helps me the most. I'm increasing my endurance and exercising as much as I can. I exercise much more now than I did during the aftermath of PMR and subsequent long term Prednisone use. PMR fast-forwarded the time clock when I felt as though I had aged 50 years. Now I have rediscovered swimming.
I'm getting back to where I used to be when I loved to exercise. Now I feel like someone in their 70's is supposed to feel like taking into account everything that happened to me in my lifetime. It was still a good lifetime though.
I agree ... there is still much to learn about these interrelated conditions. Maybe the next time it happens to someone ... things will be better. On the positive side of things -- I feel like I have learned a lot from the experience. I can sleep easily now.
After resisting acupuncture for many years, I'm currently giving it a try.
Infections were and still are my worst nightmare. I can't change my genetics but a better lifestyle goes a long way! Now it is time to work in my garden. I wish you well.
I was diagnosed with PMR 3 month ago. I immediately put myself on a 0 carb diet. Today's blood test shows Sedimentation Rate is 14 and and C-Reactive Protein is 6.
But the unbearable pain still 24/7.
Does anyone know how long could it take for the pain to go away after the inflammation is back to normal.?
I pray someone has knowledge about this. My doctor for sure doesn't.
It’s pretty hard to say because there are cases of people with seronegative PMR (meaning no elevated inflammatory markers), or it could be an entirely different condition altogether.
Did you get treated with medication for PMR, or did you just make the dietary change?
Are you working with a rheumatologist? They’re usually best positioned to be able to help with your question and especially if it could be a different inflammatory condition.
I have been battling PMR for over 6 years with constant ups and downs. Have not found a set pattern of relief. Can have a great day then suddenly back to head to knee pain in a day or two. When I reached a "can't take it anymore" I called into the doctor and was given the pack of methelpredlinisone and got immediate relief the next day. However , after day 6 the pain came back but not as severe. Good luck with your different food changes. Maybe one will work for you.
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