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I would like to hear from anyone who has had a lung transplant
Transplants | Last Active: Sep 15 8:10am | Replies (41)Comment receiving replies
That's good to know. I have no idea what rating I will get. I'll find that all out eventually. I probably won't find out much from my pulmonologist Tuesday. They have a whole separate team for the transplant department so I would imagine I'd have to set up an appointment with them first. Then I'll go from there.
Replies to "That's good to know. I have no idea what rating I will get. I'll find that..."
If you have had all or most of your testing done you most likely will have a lot of information for you. You will be referred to the Thoracic Pulmonary Department. They may require a couple more test. It does take a while for all the doctors to go over every inch of your test and make a decision. It’s a task but you really want nothing but the best. Best hospital MAYO, best tests, best doctors, five or six or more. We’re all at the BEST it’s the waiting that’s hard at this point. Keep in touch so we know how it’s going for you.
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There is a whole battery of tests that my transplant team had me take before they were able to discuss my case and get my rating. It is not a fast process. Due to my advanced condition when I met my team, I was able to have my case rushed and got through all the testing in a little over a week. However, that entitled doing up to 25 tubes of blood at a time.