Bone marrow biopsy and/or blood tests for MGUS

Hey Ginger, I do wear compression stockings and they do help somewhat. But the edema is still so evident in my right leg especially. Here's got to be a connection back to a blood clot I had in the right leg back in 2010 that traveled up to my lungs and almost made it to my heart before it was discovered. The cause for the blood clot or reason was never found or known to this day. Some of the tests that he hospital ran while I was there were just some of the labs and tests I wanted the doctor to take a look at and consider in his diagnosis or thought process because they were significant with respect to myeloma back then, but he said he had all they needed! To be honest I wanted to scream at him!! But I knew that would get me nowhere

Hey Ginger, I do wear compression stockings and they do help somewhat. But the edema is still so evident in my right leg especially. Here's got to be a connection back to a blood clot I had in the right leg back in 2010 that traveled up to my lungs and almost made it to my heart before it was discovered. The cause for the blood clot or reason was never found or known to this day. Some of the tests that he hospital ran while I was there were just some of the labs and tests I wanted the doctor to take a look at and consider in his diagnosis or thought process because they were significant with respect to myeloma back then, but he said he had all they needed! To be honest I wanted to scream at him!! But I knew that would get me nowhere

@newfiesgirl1 If you haven't tried it, lymphatic massage may help your edema issue. That is what helped me a lot a while back. Also, I had to switch out a medication that was known to sometimes cause edema.
Ginger

Hey Ginger, Thanks for that suggestion...I'll look into that. I should mention that I do take by prescription 180mg of water pills each day. So with that being said, even with that amount of water pills being taken each day, I've still got such severe edema in my legs, or I should say mainly my right leg and quite honestly my primary care doctor has done NOTHING to find out why it is that way. The results of the ultrasound were skewed and all she said about that was we could redo the ultrasound. My primary care clinic has messed up on more than one occasion and on more than one issue with me lately so I'm seriously thinking of switching clinics altogether. Ugh....I just hate the thought of doing so tho...but I know it needs to be done, either that or I need to talk to the clinic director and see that changes are made. I don't know at this point I guess what I have the energy for.

@newfiesgirl1 The medication that was a problem for me was a blood pressure med. They switched it up with another, and there was [almost] immediate edema relief. But, I still got a local gal to do lymphatic massage on my legs, then she taught me how to do it myself. Like you, I take 80mg of diuretic twice a day. There is a link here for what Mayo Clinic has to say about edema.

One thing is being able to move around and get some exercise, just walking if that is enough for you to do! As I navigate some mobility concerns, that is proving to be difficult at times, and it shows in my fluid retention. You may find, like many of us do, that it is a fine balance each day, between diet, exercise, medications, and health concerns.
https://www.mayoclinic.org/diseases-conditions/edema/symptoms-causes/syc-20366493#:~:text=Edema%20can%20affect%20any%20part,or%20cirrhosis%20of%20the%20liver.
Ginger