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Camzyos and heart murmur

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 7 12:54pm | Replies (15)

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On Camyzos for about 12 days...initially I felt great and alive but then the headaches started (I never get headaches) as if my head was in a pressure cooker, my eyes went very blurry with terrible jaw ache, swollen ankles, holding on to urine and I then developed atrial fibrillation. That why I had to come of the drug. I stopped for a week and then started again and the symptoms started again so we decided to stop it and obviously wasn't for me. I am waiting for a mitral valve repair/replacement. So very disappointed as I thought this would be the miracle drug for me. I wish everyone happiness that they are having such good results from the drug. Anyone on here had similar problems to me?

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Replies to "On Camyzos for about 12 days...initially I felt great and alive but then the headaches started..."

You didn’t say how much you were taking. They make it in as small dose as 2.5. He might try lessening the dose probably you were taking five that’s what they start everyone at.