I am a 58yr old male that was diagnosed wit CTCL last June. This after many years of treatment of this area and others as I have mild eczema rashes on elbows, arms etc. The CTCL area is on the back of my upper legs (no sun) and would not respond to creams the same as other eczema rashes. Basically the area stayed red-ish/pink and bumpy regardless of treatment. So after many different eczema treatments the area was biopsied and diagnosis confirmed with blood test. I was told I will always have this condition but it should not affect my life generally, no decrease in life span generally. I do wonder if it could later complicate and combine with other cancers if I develop something.

Happily my current treatment is two different steroid ointments (ointments have always worked better for me on eczema than creams), each for two weeks alternating. Also to supplement with 20 minutes of sun a few times a week in the summer (live in NE). The area has improved significantly over the past 10 months by sticking to this treatment program - it is fainter now and hard sometimes to identify where to apply ointments. It never really itched or spread so that isn't wasn't a problem. I'm hopeful that some upcoming sun exposure might further reduce the rash as that helps my eczema each year, dry heat in winter bad, warmer weather colder showers and some sun helps.

I think the rash worsened when I was in my 20's and didn't treat the eczema for many years while in school or existing without real health insurance.