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Arikayce and airway clearance

MAC & Bronchiectasis | Last Active: May 31 7:51am | Replies (23)

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@laureltn

Good morning! I do find it as effective, doing them in tandem (well, actually in trio because it's three at once). Now, I also follow my treatments with some form of exercise every day. We will walk 3 to 5 miles, go for a hike, do a cardio workout, weight training, or hop on a treadmill. I can usually continue to clear a little more over the course of that activity.

I tell everyone in my support group that our NTM/BE journey is as individual as our fingerprints, and that we each need to navigate it in the ways that work best for us. Some of the people in my group find autogenic drainage the most effective, others traditional AC, etc. I think the key is try different combinations and see how you do and change it up every now and then to see if you're falling into a rut.

I have been super blessed in that my Arikayce treatments really never caused insurmountable side effects and knocked out the MAC once and for all -- and it was likely becoming resistant to some or all of the Big 3. Hoping I can stay clear and get on Brensocatib when it becomes available.

Laurel

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Replies to "Good morning! I do find it as effective, doing them in tandem (well, actually in trio..."

Thank you so much for all of the tips on your experience. Yes, I also try to exercise each day and find that it definitely helps to keep airways clear as well as giving me energy and clearing my head.

I have read about the Brensocatib as well as the Arena 1 trials. It seems as though the Arena has fewer side effects. The trio of bicarbonate, glutathione, and vitamin C has been very effective in trials- and it does not involve really drug induced side effects. It almost seems so simple, that you have to wonder what took so long. At any rate, so much progress is being made, and addressing the bronchiectasis in this way is what is really needed when trying to stay clear of MAC. There is so much reason to feel encouraged and hopeful.