1. < Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

AML (Leukemia) diagnosis after Car T therapy

Posted by Bob, Alumni Mentor @grandpabob, Feb 25 3:49pm

I received Car T therapy for Non Hodgkins Lymphoma in 2018. The therapy was very successful with the complete eradication of the disease. Recently I have been diagnosed with AML (Luekemia). I was advised the likely reason of this unfortunate diagnosis, is the bone marrow has been damaged by the high doses of Chemo Drugs I was administered, prior to becoming eligible to receive the Car T treatment.

I would appreciate hearing from anyone who may had a similar.
experience.

If you are familiar with this, how was the AML treated?
I appreciate any insight you may be able to share.

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

Mentor
Lori, Volunteer Mentor | @loribmt | May 28 8:43am
In reply to @grandpabob "Hello @loribmt, @colleenyoung - I appreciate the thoughts and reaching out to check on me. I..." + (show)
@grandpabob

Hello @loribmt, @colleenyoung - I appreciate the thoughts and reaching out to check on me. I am doing reallly good, getting back into the swing of things. The AML is in remission at this point. All the blood counts are moving in the correct direction. Lori, I have decided not to go ahead with a BMT, I am not prepared to go through recovery and all the high risks that go along with it. So, I am going to power through this with the hope that this nasty thing will be fair to me. I hope you folks are all doing well, thanks again for checking in all the best to you all, and gosh check in again as I will likely forget to do so.

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Good morning, Bob. Sounds like you’re rebounding nicely from the AML treatments and hit the all-encouraging remission point! That’s fantastic news! I’m sure you did a lot of soul searching about whether to go ahead with the transplant or not. Since you’ve already been through CAR-T therapy, you’re plenty familiar with that road to recovery, so I can certainly respect your decision. I’m so happy you’re doing well and feeling so much better. Are you on a maintenance drug?

REPLY
Bob, Alumni Mentor | @grandpabob | May 31 5:55am

Good morning Lori, I am still undergoing maintenance treatment. Where I started with a twenty eight day cycle with treatments every day for two weeks with a two week recovery period, I am currently on a forty two day cycle, seven days of treatment with a 36 day recovery period.

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