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Bone marrow biopsy and/or blood tests for MGUS
Blood Cancers & Disorders | Last Active: Jun 1 1:42pm | Replies (15)Comment receiving replies
@newfiesgirl1 Sending you a big hug!
There is a difference having a hematologist, and a hematologist oncologist. Aim for the latter. There are simply so many nuances of medicine we, as patients, can't expect our team to be up-to-speed on all aspects, but we can advocate to get the best qualified for our situation. I am truly sorry you experienced a less-than-stellar interaction with this first guy. But please don't let it reflect on how things go in the future!
I was diagnosed with Systemic Lupus in 1988, and also diagnosed with fibromyalgia, so we share some things in common! My suggestion is to educate yourself from reputable sources like Mayo Clinic, Cleveland Clinic, myeloma.org. Keep your entire medical team informed about your conditions/situation. The edema could be related to one of your conditions, but I am not a medical doctor. If you can increase your activity, and/or wear compression stockings, that could help.
Ginger
Replies to "@newfiesgirl1 Sending you a big hug! There is a difference having a hematologist, and a hematologist..."
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Hey Ginger, I do wear compression stockings and they do help somewhat. But the edema is still so evident in my right leg especially. Here's got to be a connection back to a blood clot I had in the right leg back in 2010 that traveled up to my lungs and almost made it to my heart before it was discovered. The cause for the blood clot or reason was never found or known to this day. Some of the tests that he hospital ran while I was there were just some of the labs and tests I wanted the doctor to take a look at and consider in his diagnosis or thought process because they were significant with respect to myeloma back then, but he said he had all they needed! To be honest I wanted to scream at him!! But I knew that would get me nowhere