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DiscussionBone marrow biopsy and/or blood tests for MGUS
Blood Cancers & Disorders | Last Active: Jun 1 1:42pm | Replies (15)Comment receiving replies
Replies to "I agree with Ginger, I was diagnosed with MGUS IN 2022 when trying to discover why..."
Gweiman, Thanks for your advice and input. I very much appreciate it. As I mentioned before when I asked for other labs to be ran, I got shot down by the first doctor. I asked for a more definitive test to be done because I "felt" something wasn't right with my diagnosis. Trust me when I say i didn't want to be sicker than I was diagnosed to be, but I felt that the diagnosis wasn't right. That I actually was sicker than diagnosed and I was further along but my pleas fell on totally deaf ears. I learned a long time ago that I have to be my own advocate for my health because no one else is going to be. I DON'T wanna be right about this either. I had something similar happen to me back in 2004 when I was so sick by didn't know why. Was sent to many doctor's who sent me to others who sent me to others. They all looked at me like I was making it up and or I was a hypochondriac. I FINALLY stumbled across one special Immunologist, who to this day I credit with saving my life to tell me it wasn't all in my head that I was sick. All it took was a doctor that wanted to find the truth and wasn't going to give up until he found it. That's when I was diagnosed with an autoimmune disease. He didn't label me Lupus until 2005 because he was unsure if it was Lupus or MS. I presented more for Lupus so in June of 2005 I got my label. Again, please don't misunderstand me, I don't want to be more sick than I am. The diagnosis just feels "off", if that makes sense. But how do I get the doctors to listen to me without sounding like a complete whack job? Lol...