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Central sensitization syndrome and treatment?

Chronic Pain | Last Active: Oct 2 10:04am | Replies (20)

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@sue15

Hi. I was diagnosed with Central Pain Syndrome 3 years ago. I have flareups in most of my body and have lost muscle/tissue and grown weaker. I recommend this book: How To Live Well with Chronic Pain and Illness by Toni Bernhard. Also, I took a wellness class twice that used this book: Living a Healthy Life with Chronic Pain by a bunch of Stanford authors/. Sandra LeFort, Diana Laurent, etc copyright 2021 published out of Boulder, CO. The COVE app helps me with meditation and breathing. Exercise like walking and others from my PT. I also have a counselor I meet every 2 weeks. I have a psychiatrist for my medications. No more info on the diagnosis. I feel strongly that there is more to my diagnosis. Hope this helps. Take care.

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Replies to "Hi. I was diagnosed with Central Pain Syndrome 3 years ago. I have flareups in most..."

I’m happy that you found what helps you. I believe that they have helped me too, with the addition of meditation, relaxation techniques of a couple types, and very low impact exercise. To be clear though, neurologists and my confirming research indicate that “post stroke central pain”, and “central sensitization pain syndrome”even if they sound the same, and even though all pain experiences involve the brain, are not the same animal! They are not the same because their origins are not the same. Central post stroke pain can come from brain or spinal cord injury. Central sensitivity pain comes from a bodily pain somewhere that has been prolonged and amplified by the pain. Top down or bottom up is how I understand it. I leave what the symptoms of each are and what treatments work to others. I would guess though that they are pretty much the same. I take lyrica, Savella, and lamotrigine, and will try dropping the Savella soon. Respectively.
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