← Return to Camzyos and heart murmur
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Hypertrophic Cardiomyopathy (HCM) | Last Active: May 31 5:27pm | Replies (10)
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Replies to "You said the Camzyos made you “unwell”. How long were you on it? It might have..."
On Camyzos for about 12 days...initially I felt great and alive but then the headaches started (I never get headaches) as if my head was in a pressure cooker, my eyes went very blurry with terrible jaw ache, swollen ankles, holding on to urine and I then developed atrial fibrillation. That why I had to come of the drug. I stopped for a week and then started again and the symptoms started again so we decided to stop it and obviously wasn't for me. I am waiting for a mitral valve repair/replacement. So very disappointed as I thought this would be the miracle drug for me. I wish everyone happiness that they are having such good results from the drug. Anyone on here had similar problems to me?