← Return to Camzyos and heart murmur

Discussion

Camzyos and heart murmur

Hypertrophic Cardiomyopathy (HCM) | Last Active: May 31 5:27pm | Replies (10)

Comment receiving replies
@andyherman3

You said the Camzyos made you “unwell”. How long were you on it? It might have helped decrease the murmur if you ere able to tolerate it. There are newer drugs on the horizon you may be able to tolerate.

Jump to this post


Replies to "You said the Camzyos made you “unwell”. How long were you on it? It might have..."

On Camyzos for about 12 days...initially I felt great and alive but then the headaches started (I never get headaches) as if my head was in a pressure cooker, my eyes went very blurry with terrible jaw ache, swollen ankles, holding on to urine and I then developed atrial fibrillation. That why I had to come of the drug. I stopped for a week and then started again and the symptoms started again so we decided to stop it and obviously wasn't for me. I am waiting for a mitral valve repair/replacement. So very disappointed as I thought this would be the miracle drug for me. I wish everyone happiness that they are having such good results from the drug. Anyone on here had similar problems to me?