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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Oct 7 12:35pm | Replies (104)

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@colleenyoung

Welcome, @ljt61. I can imagine that you are frightened. But you are not alone. I'm tagging fellow members like @4me @liv38556 @jonezzi @marshelle @chuck138 @michellebanta @lgshoaf @enver @thompta who have experience with myxofibrosarcoma.

This is all so new for you @ljt61 and like you said you're still in a state of shock and on an emotional rollercoaster. Waiting is the hardest part. I bet you have a lot of thoughts and questions whirling about in your head as you wait for your appointments with the radiation and medical oncology.

Have you started making a list of questions? Not sure even what to ask?

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Replies to "Welcome, @ljt61. I can imagine that you are frightened. But you are not alone. I'm tagging..."

Hi all,
I wanted to update you since my post on 5/27. I had 25 treatments (5 wx, 5 days a week) and then had 6 wx for the radiation to do its thing. Not fun. On 9/10, my tumor was removed and sent to the lab. 2 days after I received the most incredible news that my surgeon got it all/all negative margins for sarcoma. On 9/16 my plastic surgeon did the flap surgery (differs from a skin graft) which involved taking skin from my thigh and attaching its blood vessels to the blood vessels left in the large hole in my foot. I spent 8 nights in the hospital as they had to check the flap every hour round the clock for 48 hours to make sure it stayed alive. It’s a fascinating procedure that has literally blown my family and friends away. Now I face about a 2 month recovery. I am wheelchair bound and my leg must be elevated and straight out at all times. I’m anxious for my first follow up on Thursday. I’m so fortunate and grateful to my amazing team of doctors and though I have a long road ahead I’m in a very different place emotionally than I was in May when I was first diagnosed. I hope this may help someone that was as terrified as I was when first getting the news. Best to everyone.