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Rare pelvic tumor, Ganglioneuroma, anyone familiar?
Women's Health | Last Active: Dec 13 7:32pm | Replies (7)Comment receiving replies
Yes, Mayo is a consideration. She found out yesterday that her referral had been forwarded to the women's health dept at U of I, so, after 16 days of waiting for them to call and schedule an appt, the referral has been forwarded to the surgical/oncologist it was supposed to go to and it's another waiting game. She is so frustrated!
Replies to "Yes, Mayo is a consideration. She found out yesterday that her referral had been forwarded to..."
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@dhansen78
Do you mind sharing your experience with ganglioneuroma treatment? I, too, have a ganglioneuroma tumor in the pelvic region and it is painful. The surgeons I've interviewed have given me mixed opinions about its removal. As a result, I've done nothing in 6 months and am scheduled today for a second MRI to see if tumor has grown. As the pain is increasing, I should seek treatment. As you know, the tumor is so rare, particularly in this location, very little is known about this tumor type and its removal is complex. I'd like to know if you've found someone with some expertise, if that's possible. Thank you! K